UK Genetic Disorders Guide

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Top :: Health > Conditions and Diseases > Genetic Disorders

Downs Syndrome

Genetic Interest Group
Information about this umbrella group of organisations working together to improve services for people with genetic disorders. A notice board, education, services and links are provided.
http://www.gig.org.uk/ - Report Link - More Info

Moebius-Support.org.uk
Information on a rare genetic condition, issues for children and adults, and a resource list.
http://www.alex-b.net/moebius - Report Link - More Info

PiXiE
Organisation supports sufferers of Pseudoxanthoma Elasticum (PXE). Includes information about the condition and its causes, guidance on managing it, and contact details.
http://www.pxe.org.uk/ - Report Link - More Info

The Alkaptonuria Society
Information about this genetic metabolic disorder for patients and professionals. Includes an FAQ, and a registration page for sufferers.
http://www.alkaptonuria.info/ - Report Link - More Info

The Williams Syndrome Foundation
Information for parents, carers, and professionals about a non-hereditary syndrome which can cause brain damage in varying degrees, combined with some physical side-effects.
http://www.williams-syndrome.org.uk/ - Report Link - More Info